Hi I’m Shelley, I am 37 years young! 22years ago I was diagnosed with a severe form of Myalgic Encephalomyelitis (ME). Which left me bed bound, paralysed, tube fed and with only the ability to speak. Requiring 24hour care for all aspects of daily living. However with many years of diligent care from my mum and carers I am on the path towards recovery.
Over the past 9 years I have improved enough to be able to be hoist lifted into my wheelchair. I am now making up for lost time ‘partying and shopping til I’m dropping’!
Recently I have been receiving assistance from Buddy Bear Conductive Education charity. The team of 5 specialist conductors twice weekly are currently working with me to retrain my brain and improve mobility, in the hope that some day I will walk again. It was through Buddy Bear that the realisation of a standing aid was necessary, to provide regular, repetitive movement. This was to enable my body to learn and get used to the upright position.
Various standing aids, tilting tables etc were trialled by myself and Buddy Bear. However the Baffin Trio was by far the most superior. With its range of sitting, lying and standing positions it was everything I needed, all in one piece of equipment. Unfortunately this life changing piece of equipment is not available on the NHS. Although I feel it should be. The local community here in Fermanagh fundraised for my Baffin Trio and I will be forever grateful to them.
I have been using the Baffin Trio for 1 month now and I have already seen huge improvements. Some of which I would not have thought possible. The main benefit is that it has vastly reduced my extreme dizziness when in a horizontal position or when being turned in bed. This enables me to be worked with longer during Conductive Education . I can be rolled in mats and held up on my feet longer without fainting episodes. I have also noticed I am sleeping better,my circulation has greatly improved and I have less fluid retention. (The latter means I require less night time toileting). Other benefits include reduced heart palpitations and fluctuations with blood pressure, improved bowel function and my lung capacity has strengthened.
If these are the short term improvements I can only imagine the long term benefits.
At first setting up the Baffin Trio seemed tricky and time consuming. However, with practice I can be standing in my machine within 5 minutes.
I have also learned to do short 10 minute stands until you can build up to longer periods. The features of the Baffin Trio which other equipment didn’t have allows me to quickly recline into a sitting/lying position if I feel unwell.
Additionally the support of the Mooring Mediquip team has been invaluable and I know they are readily available when needed for advice, readjustment and maintenance etc.
I absolutely love this piece of equipment. I feel safe and secure when using it and would highly recommend it.